A young girl from Maghery living with a rare skin condition says she feels proud to have her voice heard on Rare Disease Day.
Lucy Gallagher has Harlequin ichthyosis and is a member of the new All-Ireland Children and Young Adults Research Advisory Group for Rare Diseases.
Research shows 1 in 17 people live with a rare disease and around 70% of those are children.
Lucy says what is important to her is being treated equally:
