In one final appeal to the HSE, patients with Friedreich’s ataxia took to the streets of Dublin city today to call for the funding of Skyclarys.
The Health Service Executive is set to make a final decision on whether to fund the treatment in two days’ time.
The some 200 people living with the neuromuscular condition in Ireland describe the drug as life-changing, as it can slow the progression of the disease.
Jessie Abbey and her family were among hundreds who gathered at the Garden of Remembrance today:
