The case of Aaron Langan will be raised in the Seanad next week.
The nine-year-old from Laghey, who has Duchenne Muscular Dystrophy, is currently awaiting HSE approval for a treatment called Givinostat, which could benefit his quality of life, but there has been a delay in administrative speed, despite the medication receiving EU approval.
On today’s Greg Hughes Show, Cathaoirleach of the Lifford-Stranorlar Municipal District Martin Harley said that Senator Manus Boyle will be bringing attention to the issue:
