An international conference discussing the impact of the rare disease amyloidosis, often referred to as “Donegal Amy”, will be taking place in Gweedore later this week.
The conference, called “Emerging From The Shadows”, will host a number of international experts on the disease sharing their experiences and knowledge.
ATTR Amyloidosis, known commonly as “Donegal Amy” due to its prevalence on the North West coast of Donegal, is a rare hereditary condition that affects the heart, digestive and nervous systems, often resulting in death.
The disease currently has no known cure, but there are a number of treatment methods available to lessen its impact.
Among the topics to be discussed at the conference will be the need for early diagnosis and speedy access to ATTR specific treatments, the prevalence of the version of Amyloidosis most commonly present in Donegal, as well as discussing new treatments and clinical trials now available to treat the disease.
The conference takes place in the An Cuirt Hotel in Gweedore this Saturday May 28th, from 9:30 am to 4:30 pm.